Yes, we can!
Our purpose is to unite all families who have been affected by Myotubular Myopathy and Centronuclear Myopathy- because there is STRENGTH IN NUMBERS. We also seek to inform these families- because KNOWLEDGE IS POWER.
This recorded webcast is a way to meet families affected by Myotubular Myopathy and Centronuclear Myopathy. It's also a valuable opportunity to learn from researchers who are working to find a cure!

Please visit The Joshua Frase Foundation at www.joshuafrase.org
View the event press release here.
For On-Demand Access to Recorded Webcast...
please click on the green button above.
This event was webcast live on:
Saturday, July 25, 2009 9:00 am
Sunday, July 26, 2009 2:00 pm
(Central Time)
